357388
Position
Executive Director
Company
The Global Foundation for Peroxisomal Disorders
Location
Tulsa Oklahoma UNITED STATES
Bio
Melissa Bryce Gamble is the Executive Director and Co-Founder of the Global Foundation for Peroxisomal Disorders, an international nonprofit, public charity and patient advocacy group focused on supporting families and funding groundbreaking research on peroxisomal disorders which are rare conditions that are generally terminal in childhood. After learning that her daughter, Ginny, was diagnosed with a peroxisomal disorder, Melissa set out to find other parents on a similar journey. What she found was a small community of parents corresponding via email and supporting one another as they navigated a lonely diagnosis. Melissa’s desire to raise funds for research, support families, and promote awareness of peroxisomal disorders led to the formation of the Global Foundation for Peroxisomal Disorders (GFPD) in October of 2010. Melissa served as Treasurer of the GFPD from 2010-2015, then Board President from 2016-2017. She now serves as Executive Director of the GFPD, overseeing GFPD staff and volunteers in Tulsa, Oklahoma. Her daughter, Ginny, passed away April 25, 2015 at the age of 6 1/2 from the degenerative effects of PBD-ZSD after a long and valiant battle. Melissa is also the mother to two rambunctious kiddos, Jack (age 6) and Avery (age 5). Along with her husband, Brant, Melissa strives to honor Ginny's memory through her work with the GFPD and as an advocate for children and adults facing rare diseases.
Interests
None yet.